My first appointment was on December 15th, 2010. During this appointment I did not see my doctor but I did see his nurse practitioner who advised me that “everything looked good.” Later that day I did see the ultrasound technician; it was then that I had found out that I was pregnant with twins. The ultrasound technician had told my husband and I that everything looked fine and both babies were healthy although she did state that one was 4 days larger than the other but it was not a problem. She had also told us that the babies were fraternal twins. To my knowledge, my ultrasound was not reviewed by my doctor and I was not informed of any deficits.
A few weeks after my initial appointment I began having chest pain and feeling as though I had high blood pressure. My husband had taken me into the emergency room and we were released a few hours later with the doctor being unable to find anything wrong. There was no ultrasound or heart monitor used and my pregnancy was not assessed during the emergency room visit. I went to see my doctor the next day to get a check up because I still did not feel well. He was unable to see me at that time and his nurse practitioner saw me instead. She measured my stomach, took my blood pressure and swabbed my throat. After her assessment she told me I was just fine. She, at this time, suggested to my husband and I that I was having panic attacks and that I should “just relax.”
On January 18th, 2011 my husband and I went to see the doctor for a scheduled check up and ultrasound. Again, he was not available for this appointment and I was asked to see the nurse practitioner or reschedule to see him in a few weeks. Because I still was not feeling well, and I was very swollen to my extremities, I choose to see the nurse practitioner right away. At this time I asked her about my edema and how large my abdomen had become and how hard it had become. She measured my abdomen and checked the babies heart sounds. I was reassured that everything was all right and that they were growing well. A few hours later I had gone in for my ultrasound with the technician. She had told us again that they were fraternal twins and that one was now a week larger than the other. She assured us that everything looked normal and that they were healthy. I had asked about the smaller baby and why it was not moving much and the technician assured me that the baby was just “sleeping.” To my knowledge, my ultrasound was not reviewed by the doctor and I was not informed of any deficits.
I was still not feeling well and I was tired of not having seen a doctor at all so I switched Doctors in the first week of February. I had my first appointment with my new Doctor on February 14th but unfortunately I had gone into premature labor on February 13th and both babies ended up passing away at 20 weeks gestation. At the Hospital where I delivered, I was told that they were not fraternal twins, but that they were most likely identical. The obstetrician told me that they most likely were suffering from twin to twin transfusion syndrome because they shared a placenta. This was why I had so much edema and had a hard abdomen. one twin had too much fluid and the other had barely any at all. the larger twin was also swollen with edema everywhere. I was also given an ultrasound at our local hospital (before being transferred to the hospital I delivered at) where they told me one was 2 weeks larger than the other.
When I arrived at the hospital I delivered at, the doctor tried to get my ultrasound reports from my original Doctor. The office initially only sent my first ultrasound. When she called back to get the other ultrasound they refused to send her anything else. I went to the office and signed a consent form to release everything to my new doctor.
I am meeting with the doctor who delivered the twins on March 15th. She did some genetic testing on them and said she would investigate if the ultrasounds showed any complications early on.
Although nothing may have been done to prevent this tragic loss I would have appreciated something being done rather than nothing. I would have preferred if my doctor would have reviewed the ultrasounds rather than have a technician (who is in no position to diagnose) give me a false sense of good health. I know there are treatments for this syndrome and I would have appreciated if something would have been attempted.
the only thing I can get out of this is that if you feel that there is something wrong DO NOT let anyone tell you that you are having a panic attack or that you are fine. Go and get a new doctor if yours is not available to you or is not considerate of you. I DID NOT SEE A DOCTOR UNTIL THE DAY I DELIVERED AND LOST MY TWIN BOYS.