Hi all, I'm just at the beginning of my journey as a mother of a special needs child. Micah is my recipient survivor. He was born at 28 weeks in March of 2007 and was severely sick at birth. At some point the TTTS journey caused bi-lateral level four brain bleeds. He also has chronic lung disease, optic nerve hypoplasia (he is visually impaired), and hydrocephalus which has resulted in three shunt placements plus four shunt revisions in a space of about one year. He is almost two and severely delayed physically and somewhat mentally as well. All that being said, he is doing remarkably well and we rejoice with each small progression. He sat up all by himself for 1 min. for the first time just a week ago! He is a happy, patient child with a contagious laugh. He loves different sounds and has even started saying a few "words". I love him with all my heart and I am so grateful he chose to stay with us instead of finishing his fight early like the doctors all believed he would. The reason I am writing today is because I had to mourn the loss of another dream. Micah loves dancing to music.. twirling and swaying in my arms. As we were dancing today I realized that most likely I will never in this life dance at his wedding. Tears ran down my cheeks as I smiled at his joy. I've been reading posts on here since Micah's birth and I have been amazed at the strength each of you show and share. Your willingness to fight for your child and be so positive so much of the time is a blessing for me. Your willingness to share your hard times helps too. It makes me feel like I can do it too. Mostly, thanks for listening. It helps knowing that as I write this there is someone who understands that death is not the only way that dreams are changed forever. ~Melissa Mother of 6 sons including Micah (3/5/07) TTTS survivor and Spencer (3/5/07-3/13/07) TTTS angel.